World map of Moebius Syndrome


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Moebius Syndrome stories


MOVING FROM ALONENESS TO TOGETHERNESS


It took me 22 years to get the diagnosis for a condition that was visible and written in medical literature since 1888. That's a whole BOOK on aloneness! i went into teaching and taught for 43 years. Lots of advocacy! A few more books here! And I'm...

Views: 507 Apr 26, 2016, 5:20 PM by Sandy

THERESA'S STORY


My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have chi...

Views: 457 Aug 6, 2016, 2:05 PM by Theresa

MY SURVIVOR PRINCESS (MOEBIUS SYNDROME)


Views: 311 Jan 3, 2019, 11:11 PM by Maridel Carapatan

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