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Muscular dystrophy stories
I want to learn English and Spanish. I am looking for friends to communicate
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Views: 543 Jan 29, 2016, 5:21 PM by Bozhena
My daughter was diagnosed with a rare and severe form of congenital muscular dystrophy at 3 years old, shes now 7 years, old in 4 years shes rapidly progressed with her condition, we do not know of anyone with the same condition for her to comm...
Views: 538 Apr 4, 2016, 3:14 PM by Helen Sarfo
At birth when I had breathing problems, I was moved to the NICU. I was diagnosed with two other diseases before we received a correct diagnose at the University of Iowa after a muscle biopsy at age 10. I visit a neuromuscul...
Views: 511 Feb 21, 2016, 11:13 AM by Dalton
Hi
So... I have lived with Nemaline Myopathy for 17 years. I have a tracheostomy, full time ventilation, spinal rods to correct a scoliosis and 24 hour care. I previously had a gastrostomy but I have since had it removed.
I lead a normal, rea...
Views: 474 Feb 4, 2016, 12:15 PM by Ginny Butcher
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