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Our story

Our journey started in 2010 with our first born son and also first born nmer he passed away at 12 days old then our second born son in 2011 also born with nm he passed away at 12 weeks and in 2016 our third born son was also born with nm and its been a roller coaster and we are about to celebrate his first birthday and he come so far in this first year

World map of Nemaline Myopathy


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