Help us to help more people
  2. Nemaline Myopathy
  3. Advice
Wheelchair
by Star
Entre em contato com nosso grupo no whatsapp: (31)9.9196-0001
by Lívia
Glycopyrolate
by Rachel
Aggressive Respitory treatment/prevention/therapy helped greatly to keep my daughter off ventilator!
by Mary Jo Draisma
the help of all family members
by Melanie
We started Robinol when she was 5 months old and that made all the difference in the world!
by Marisa
Found a great website www.nemaline.org
by Greybeard
I now except it almost
by Mariah
Creatine and L-Tyrosine have helped with muscle development.
by allredc
Regularly seeing doctors
by Star
Cough assist
by Rachel
I gave 100% to help my daughter live! Quitting work too.
by Mary Jo Draisma
to have a dog for best friend
by Melanie
At 3 she started talking really well. Now at 5 most people can understand her!
by Marisa
Found and joined the support group
by Greybeard
my daughter and sisters understand each other
by Mariah
Having ankle braces keeps my walking stable and greatly reduces back and hip pain.
by allredc
Cough assist machine
by Star
A great team of Doctors at Children's Hospital helped us manage.
by Mary Jo Draisma
my mum figths for me like a lion
by Melanie
She has a true joy for life that is amazing to be a part of!
by Marisa
Contacted others
by Greybeard
had a lot of therapie that helpt some
by Mariah
Keeping track of what time I start to lose energy makes activities much easier.
by allredc