There are 81 people in the Nemaline Myopathy map

Couple and Nemaline Myopathy

Is it easy to find a partner and/or maintain relationship when you hav...

1 answer
Nemaline Myopathy life expectancy

What is the life expectancy of someone with Nemaline Myopathy?

2 answers
Nemaline Myopathy treatments

What are the best treatments for Nemaline Myopathy?

3 answers
ICD9 and ICD10 codes of Nemaline Myopathy

ICD10 code of Nemaline Myopathy and ICD9 code

1 answer

Stories of Nemaline Myopathy

STORY
Nemaline Myopathy stories
Nemaline Myopathy stories
Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .
Nemaline Myopathy stories
Nemaline Myopathy stories

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Nemaline Myopathy forum

QUESTION

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Statistics of Nemaline Myopathy

3 people with Nemaline Myopathy have taken the SF36 survey. Mean of Nemaline Myopathy is 1962 points (54 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Nemaline Myopathy