Stories of Nemaline Myopathy

STORY
Nemaline Myopathy stories
Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .

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Nemaline Myopathy forum

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Statistics of Nemaline Myopathy

1 people with Nemaline Myopathy have taken the SF36 survey. Mean of Nemaline Myopathy is 2115 points (59 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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