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There are 81 people in the Nemaline Myopathy map
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ICD10 code of Nemaline Myopathy and ICD9 code
Stories of Nemaline Myopathy
8/29/17, 1:32 AM by
Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .
7/20/17, 9:29 PM by
OUR FOURTH DAUGHTER BORN STARTED TO FAIL AT ABOUT TWO WEAKS THAT WE NOTICED. FIRST WEIGHT LOSS THEN JUST PHYSICALLY WEAKER BY THE MINUTE. UNABLE TO SUCK SWALLOW AND BREATH. THROUGH TESTING AND DIAGNOSIS WE HAVE LEARNED SHE HAS A NEW MUTATION. MUSCLE BIOP
8/29/17, 12:33 AM by
Mary Jo Draisma
IT'S BEEN A LONG ROAD
8/29/17, 9:16 AM by
NM FROM HOLLAND
8/30/17, 3:37 PM by
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Statistics of Nemaline Myopathy
people with Nemaline Myopathy have taken the SF36 survey. Mean of Nemaline Myopathy is 1962 points (54 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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