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What are the best treatments for Neurofibromatosis?

See the best treatments for Neurofibromatosis here

Neurofibromatosis treatments

Treatments for Neurofibromatosis


Neurofibromatosis (NF) is a genetic disorder that causes tumors to form on nerve tissue. It can affect various parts of the body, including the brain, spinal cord, nerves, and skin. While there is no cure for NF, there are several treatment options available to manage the symptoms and complications associated with the condition.



1. Regular Monitoring and Medical Care


Individuals with NF should receive regular medical check-ups to monitor the progression of the disease and identify any potential complications. This may involve physical examinations, imaging tests (such as MRI or CT scans), and other diagnostic procedures. Early detection and intervention can help prevent or manage complications effectively.



2. Medications


Medications may be prescribed to manage specific symptoms or complications of NF. For example, pain medications can help alleviate discomfort caused by tumors pressing on nerves. Anti-seizure medications may be used to control seizures in individuals with NF1, a common form of the disorder. Medications can also be prescribed to manage high blood pressure, learning disabilities, or attention deficit hyperactivity disorder (ADHD) associated with NF.



3. Surgery


Surgical intervention may be necessary to remove tumors or correct complications caused by NF. The decision to undergo surgery depends on various factors, including the size, location, and potential impact of the tumor on the affected individual's health. Surgery can help relieve symptoms, improve function, and enhance quality of life. However, it is important to note that not all tumors can be surgically removed, and the procedure may carry certain risks.



4. Radiation Therapy


Radiation therapy involves using high-energy beams to target and destroy tumors. It may be recommended when surgery is not feasible or when tumors cannot be completely removed. Radiation therapy can help shrink tumors, alleviate symptoms, and prevent further growth. However, it is typically used as a last resort due to potential long-term side effects.



5. Genetic Counseling


Genetic counseling is an essential component of NF management, especially for individuals with a family history of the disorder or those planning to have children. Genetic counselors can provide information about the inheritance pattern, risks, and implications of NF. They can also offer guidance on family planning options, prenatal testing, and reproductive choices.



6. Supportive Therapies


Various supportive therapies can help individuals with NF manage their symptoms and improve their overall well-being. These may include:



  • Physical therapy: to improve mobility, strength, and coordination.

  • Occupational therapy: to enhance daily living skills and independence.

  • Speech therapy: to address speech and swallowing difficulties.

  • Psychological counseling: to cope with emotional challenges, anxiety, or depression.

  • Special education: to support learning and development in children with NF-related cognitive impairments.



7. Clinical Trials


Participating in clinical trials can provide individuals with NF access to experimental treatments and therapies that are not yet widely available. Clinical trials help researchers evaluate the safety and effectiveness of new interventions, potentially leading to advancements in NF treatment.



It is important to note that the treatment approach for Neurofibromatosis may vary depending on the specific type and severity of the condition. Therefore, it is crucial for individuals with NF to consult with a healthcare professional who specializes in the disorder to determine the most appropriate treatment plan.


Diseasemaps
6 answers
Currently there are no treatments to prevent symptoms of NF. Monitoring is very important so that issues can be addressed sooner rather then later. Treatments often are surgical. Pain management is an issue many people with this condition struggle with and needs to be brought under control.

Posted Mar 4, 2017 by Debbie 600
Translated from french Improve translation
Everything will depend on the affected ...

Chemotherapy

Posted Sep 28, 2017 by aurel 1320
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The laser operation often to remove the neurofibroma

Posted Oct 10, 2017 by Robert 1750
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Cirurgias to remove os tumors

Posted Oct 18, 2017 by Maria Eduarda 1000
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There is no treatment, only treatment paleativos

Posted Oct 18, 2017 by Luluzinha 1000

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Shortly after birth in 1968 Michael was diagnosed with Neurofibromatosis 1 and has undergone 20 plus surgeries. For years Michael had high blood pressure spikes, profuse sweating episodes, pain, panic attacks and more that landed him in the ER and D...
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In March 2012 my hearing got bad suddenly in th left ear.  Subsequent tests showed a meningioma as well as a vestibular schwannoma, a classic diagnosis for NF2.  Both tumours were succesfully removed leaving me with facial palsy and balance issues....
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I was told at a young age I had NF, nothing more.  As I got older around 18, lumps started to appear on my body.  I went to my doctor he told me he thinks they were NF lumps, he checked to see if I had large brown spots he counted 6 and said they ...
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The first time I can remember being diagnosed was at age 10.  I have several small tumors all over, cafe Au Lait spots and a couple of larger tumors. In 2010, I had a GIST tumor removed which according to my surgeon is very common with people with N...

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Has anyone had surgery on their chest to remove tumors inside from nerves?

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