- Ollier disease
- Interviews
Amy's interview
How did all start?
I was born with Ollier Disease. At first, when my parents first noticed, they thought it was arthritis. But later on, they realized it was something more serious. I was 2 years old when I began walking. I hadn't walked up to that point because my foot was curved over (from the disease) and it affected my walking. Once i began walking my curved over foot/ankle slowly became normal again. I was diagnosed at age 3.
Do you already have a diagnosis? How long did it take you to get it?
Yes, I've already been diagnosed, not sure how long it took.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Yes, I've been treated. Surgery was the most useful method.
What have been your biggest difficulties?
Doing casual activities, especially in sport, seeming my bones broke easier in the time of playing it.
How has your social and family environment reacted? Have your social or family relationships changed?
Family environment adapted to the idea of being having a disease. Some social relationships have been lost or affected by it, but most have just lived with it.
What do you think about the future?
The future will be difficult. Once I have completely stopped growing, I am planning to have my last major surgery. So that will be exciting.
What would you like to do if you didn’t have your condition?
Everything!!!!
If you had to describe your life in a sentence, what would it be?
Lucky to be alive and that I'm not that affected, unlike some people.
Finally, what advice would you give to a person in a similar situation?
Just be happy with who you are. You are unique and beautiful no matter what anyone says. Life may be harder than other's, but just be thankful for this life!
