Can people with Opsoclonus myoclonus syndrome work? What kind of work can they perform?

Opsoclonus myoclonus syndrome (OMS) is a rare neurological disorder characterized by involuntary eye movements (opsoclonus) and muscle jerks (myoclonus). It primarily affects children, but can also occur in adults. OMS can have a significant impact on a person's daily life, including their ability to work.

While the severity and symptoms of OMS can vary from person to person, it is important to note that individuals with OMS can still lead fulfilling lives and pursue employment opportunities. The ability to work with OMS depends on several factors, including the severity of symptoms, the individual's overall health, and the specific job requirements.

Individuals with OMS may face challenges in the workplace due to:

• Motor difficulties: The myoclonus component of OMS can cause sudden muscle jerks, which may affect fine motor skills and coordination. This can make tasks that require precise movements or dexterity more challenging.


• Visual disturbances: Opsoclonus, the rapid and involuntary eye movements, can lead to visual disturbances and difficulties focusing. This may impact tasks that require sustained visual attention or accurate depth perception.


• Fatigue and weakness: OMS can cause fatigue and weakness, which can affect stamina and the ability to perform physically demanding tasks for extended periods.


• Cognitive impairments: Some individuals with OMS may experience cognitive impairments, such as difficulties with memory, attention, or processing speed. This can impact tasks that require complex problem-solving or multitasking.


• Emotional and psychological factors: OMS can have emotional and psychological effects, including anxiety and mood disturbances. These factors may influence an individual's ability to cope with stressors in the workplace.

Despite these challenges, many individuals with OMS are capable of working and contributing to the workforce. The key to successful employment lies in finding a job that accommodates their specific needs and abilities. Some potential work options for individuals with OMS include:

• Flexible or remote work: Jobs that offer flexibility in terms of working hours or location can be beneficial for individuals with OMS. This allows them to manage their symptoms, attend medical appointments, and rest when needed.


• Desk-based or sedentary work: Jobs that primarily involve desk work, such as administrative roles, data entry, writing, or computer programming, can be suitable for individuals with OMS. These roles minimize physical exertion and can be adapted to accommodate any visual or motor difficulties.


• Consulting or freelance work: Some individuals with OMS may choose to work as consultants or freelancers in their area of expertise. This allows for greater control over work schedules and workload, providing flexibility to manage symptoms effectively.


• Supportive work environments: Working in environments that prioritize employee well-being and provide necessary accommodations can greatly benefit individuals with OMS. Employers who understand the condition and are willing to make reasonable adjustments can create a supportive work environment.


• Advocacy and awareness roles: Some individuals with OMS may choose to work in advocacy or awareness roles related to their condition. This can involve raising awareness, supporting research efforts, or providing educational resources to others affected by OMS.

It is important for individuals with OMS to communicate openly with their employers about their condition and any specific accommodations they may require. This can include adjustments to work schedules, modifications to the physical workspace, or assistive technologies to aid in tasks.

Ultimately, the ability to work with OMS depends on the individual's unique circumstances and the support they receive from their employer and healthcare team. With appropriate accommodations and understanding, individuals with OMS can find meaningful employment and contribute to the workforce.