World map of Osteopetrosis


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Osteopetrosis stories


DENSE BONES THAT BREAK EASILY


I found out I had very dense bones by accident after taking an x-ray for a possible broken wrist. Aside from breaking both knee caps (a year apart) I didn't think much about the disease until I was in my mid 40's. At that time I began having horrific...

Views: 511 Jul 27, 2017, 9:53 AM by Cheryl

I'VE HAD OSTEOPETROSIS SINCE I WAS 6 MONTHS


hello, I'm a 16 year old young lady that has had osteopetrosis since I was 6 months old! I had a bone marrow transplant back In 2010 when I was 10 years old, and im getting ready for another one in august🌸 I've broken over 70+ bones! Please pr...

Views: 397 Jul 27, 2017, 4:15 PM by Bailey Huddleston

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Osteopetrosis forum


TOTAL HIP REPLACEMENT


I'm 66 yrs old with ADO 11 and will soon be looking for orthopedic surgeons who will be willing to explore possibility of total hip replacement due to degenerative osteoarthritis w osteopetrosis.    Know of any specialists on the East Coast of the ...

Views: 205 Dec 3, 2018, 6:33 PM by karmavet

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