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Osteopetrosis
Advice
Advice of Osteopetrosis
Mine is Adult type II
by Mary
My doctors at Johns Hopkins Metabolic Bone Clinic
by Cheryl
Listening to my body... even if it was against doctors advice
by Karen
Early diagnosis
by María Ximena
7 years of withholding calcium made my disease worse later in life.
by Stephanie
My bones micro fracture very easy
by Mary
Family Support, especially my husband and daughters
by Cheryl
Don't let my disease limit me
by Karen
Find a match early to do the Bone Marrow Transplant
by María Ximena
Mum, dad and I always adapted no matter the situation
by Stephanie
i have bone pain every day
by Mary
Rest when my body tells me to
by Cheryl
Meditation
by Karen
Decide to go forward despite the distance and dificulties
by María Ximena
My Ortho Dr. has put me back together for over 24 years
by Stephanie