Advice of Osteopetrosis

Mine is Adult type II

by Mary

My doctors at Johns Hopkins Metabolic Bone Clinic

by Cheryl

Listening to my body... even if it was against doctors advice

by Karen

Early diagnosis

by María Ximena

7 years of withholding calcium made my disease worse later in life.

by Stephanie

My bones micro fracture very easy

by Mary

Family Support, especially my husband and daughters

by Cheryl

Don't let my disease limit me

by Karen

Find a match early to do the Bone Marrow Transplant

by María Ximena

Mum, dad and I always adapted no matter the situation

by Stephanie

i have bone pain every day

by Mary

Rest when my body tells me to

by Cheryl

Meditation

by Karen

Decide to go forward despite the distance and dificulties

by María Ximena

My Ortho Dr. has put me back together for over 24 years

by Stephanie