Mine is Adult type II
My doctors at Johns Hopkins Metabolic Bone Clinic
Listening to my body... even if it was against doctors advice
Early diagnosis
7 years of withholding calcium made my disease worse later in life.
My bones micro fracture very easy
Family Support, especially my husband and daughters
Don't let my disease limit me
Find a match early to do the Bone Marrow Transplant
Mum, dad and I always adapted no matter the situation
i have bone pain every day
Rest when my body tells me to
Decide to go forward despite the distance and dificulties
My Ortho Dr. has put me back together for over 24 years