Panhypopituitarism

Panhypopituitarism is a potentially life-threatening endocrine disorder that is classified by a distinct absence of the pituitary hormones which, consequently, causes hormone insufficiencies in the other endocrine glands, most notably, the thyroid, adrenals, and ovaries/testes, as the pituitary is unable to trigger their function. This dangerous domino effect, then, is what leads to the rise of the symptoms we face every day and the reason why we take our medicine and need constant blood work.

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PANHYPOPITUITARISM

Synonyms:
Panhypopituitarism

pituitary insufficiency

pituitary adenoma

Sheehan's syndrome (postpartum Panhypopituitarism)

Growth hormone insufficient

Types:
Hypopituitarism

Panhypopituitarism

SOD/ONH

SYSTEMS AFECTED

Digestive system

Endocrine system

Immune system

Muscular system

Reproductive system

Skeletal system

Urinary system

Symptoms

Severe fatigue

Nausea

Chronic pain/joint pain

Insomnia

Adrenal crisis

Adrenal fatigue

Diabetes insipidus

Compromised immune system

Septo-optic dysplasia/optic nerve hypoplasia

Hypoglycemia

Anxiety

Depression

Psychotic behavior/issues

Growth hormone insufficiency

Adrenal insufficiency

Hypothyroidism

Weight gain/loss

Abdominal pain/constipation/diarrhea

Infertility

Low sex drive

Sensitivity to cold

Short Stature

Lack of menstrual periods

Irritability

Lack of normal body hair

Other developmental lags and differences

Treatments

Levothyroxine/Synthroid

Hydrocortisone/cortisol

Human Growth Hormone (rDNA origin)

Anxiety/Depression Medication

other

Specialist who treat it

Endocrinology

Who can help you

Adrian Sommerville

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Living with Panhypopituitarism. How to live with Panhypopituitarism?

Can people with Panhypopituitarism work? What kind of work can they perform?

Is there any natural treatment for Panhypopituitarism?

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Is it advisable to do exercise when affected by Panhypopituitarism? Which activities would you suggest and how intense should they be?

Panhypopituitarism stories

КАК ВОЗНИКЛА БОЛЕЗНЬ

Пангипопитуитаризм возник вследствии опухоли гипофиза- краниофарингиомы, нет все гомонов гипофиза, гипофиза тоже нет

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PITUITARY TUMOR

In September of 2013 I started to have prolonged headaches. I went to several doctors and a chiropractor but no one seemed to know why I was having headaches. I finally went to the ER and after dealing with initial looks of dismissal as to why I woul...

Views: 835 Jun 6, 2016, 6:40 PM by Bryan

LUCY'S STORY

Mum to congenital pan-hypit girl

Views: 781 by Lucy

DANIEL'S STORY

I was Born with PHP. I wasn't properly diagnosed until I was 3.

Views: 747 by Daniel

CUSHINGS DISEASE THAT LED TO PANHYPOPITUITARISM

A few doctors theorized my pregnancy caused a macro adenoma. I began having weird symptoms before I was diagnosed i.e. My hair started falling out, my nails began to pit, I had galactorrhea even though I quit nursing a year before, no menses, and I s...

Views: 679 by Debby

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Panhypopituitarism forum

LIFE HEADED AND DIZZY

Even though I am taking typically 35mg of Hydrocortisone, 20 at 8 am, 10 at 11 am and 5 at 2pm I suffer from sensitivity to glare and feel light headed and dizzy. it is hard to concentrate and generally feel crook. I am on Testesterone gel, 1 sachet...

Views: 446 Jan 23, 2016, 7:28 AM by JIm Pridham

DOES ANYONE HAVE DEPRESSION/ANXIETY AND WHAT DRUGS HELP?

My 22-year-old nephew was diagnosed with panhypopituitarism before he was one year old. He's taken Cortef, growth hormone, and Synthroid since then. The last few years he's had problems with social anxieties and depression. He's done a lot of jumping...

Views: 189 Dec 27, 2019, 3:08 PM by Leo

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