Panhypopituitarism is a potentially life-threatening endocrine disorder that is classified by a distinct absence of the pituitary hormones which, consequently, causes hormone insufficiencies in the other endocrine glands, most notably, the thyroid, adrenals, and ovaries/testes, as the pituitary is unable to trigger their function. This dangerous domino effect, then, is what leads to the rise of the symptoms we face every day and the reason why we take our medicine and need constant blood work.

There are 337 people in the Panhypopituitarism map

Panhypopituitarism life expectancy

What is the life expectancy of someone with Panhypopituitarism?

1 answer
Is Panhypopituitarism contagious?

Is Panhypopituitarism contagious?

3 answers
Celebrities with Panhypopituitarism

Celebrities with Panhypopituitarism

1 answer
Is Panhypopituitarism hereditary?

Is Panhypopituitarism hereditary?

1 answer

PANHYPOPITUITARISM

Synonyms:
Panhypopituitarism
pituitary insufficiency
pituitary adenoma
Sheehan's syndrome (postpartum Panhypopituitarism)
Growth hormone insufficient

Types:
Hypopituitarism
Panhypopituitarism
SOD/ONH

SYSTEMS AFECTED

Digestive system
Digestive system
Endocrine system
Endocrine system
Immune system
Immune system
Muscular system
Muscular system
Reproductive system
Reproductive system
Skeletal system
Skeletal system
Urinary system
Urinary system

Symptoms

  • Severe fatigue
  • Nausea
  • Chronic pain/joint pain
  • Insomnia
  • Adrenal crisis
  • Adrenal fatigue
  • Diabetes insipidus
  • Compromised immune system
  • Septo-optic dysplasia/optic nerve hypoplasia
  • Hypoglycemia
  • Anxiety
  • Depression
  • Psychotic behavior/issues
  • Growth hormone insufficiency
  • Adrenal insufficiency
  • Hypothyroidism
  • Weight gain/loss
  • Abdominal pain/constipation/diarrhea
  • Infertility
  • Low sex drive
  • Sensitivity to cold
  • Short Stature
  • Lack of menstrual periods
  • Irritability
  • Lack of normal body hair
  • Other developmental lags and differences

Treatments

  • Levothyroxine/Synthroid
  • Hydrocortisone/cortisol
  • Human Growth Hormone (rDNA origin)
  • Anxiety/Depression Medication
  • other
  • Specialist who treat it

    Endocrinology
    ICD9 and ICD10 codes of Panhypopituitarism

    ICD10 code of Panhypopituitarism and ICD9 code

    1 answer
    Natural treatment of Panhypopituitarism

    Is there any natural treatment for Panhypopituitarism?

    4 answers
    Living with Panhypopituitarism

    Living with Panhypopituitarism. How to live with Panhypopituitarism?

    2 answers
    Panhypopituitarism symptoms

    Which are the symptoms of Panhypopituitarism?

    4 answers

    Stories of Panhypopituitarism

    STORY
    Panhypopituitarism stories
    Пангипопитуитаризм возник вследствии опухоли гипофиза- краниофарингиомы, нет все гомонов гипофиза, гипофиза тоже нет
    Panhypopituitarism stories
    In September of 2013 I started to have prolonged headaches. I went to several doctors and a chiropractor but no one seemed to know why I was having headaches. I finally went to the ER and after dealing with initial looks of dismissal as to why I woul...
    Panhypopituitarism stories
    Mum to congenital pan-hypit girl
    Panhypopituitarism stories
    I was Born with PHP. I wasn't properly diagnosed until I was 3. 
    Panhypopituitarism stories
    A few doctors theorized my pregnancy caused a macro adenoma. I began having weird symptoms before I was diagnosed i.e. My hair started falling out, my nails began to pit, I had galactorrhea even though I quit nursing a year before, no menses, and I s...

    Tell your story and help others

    Tell my story

    View more

    Panhypopituitarism forum

    QUESTION
    Question 160
    Even though I am taking typically 35mg of Hydrocortisone, 20 at 8 am, 10 at 11 am and 5 at 2pm I suffer from sensitivity to glare and feel light headed and dizzy. it is hard to concentrate and generally feel crook. I am on Testesterone gel, 1 sachet...

    Ask a question and get answers from other users.

    Ask a question

    View more

    Statistics of Panhypopituitarism

    12 people with Panhypopituitarism have taken the SF36 survey. Mean of Panhypopituitarism is 1556 points (43 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

    View more

    Find your symptoms soulmates

    From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

    Symptoms soulmates

    Add your symptoms and discover your soulmates map

    Soulmates map