Born with PHP and SOD/ONH
I was born with PHP and SOD/ONH but was not diagnosed until after I was adopted. My adoptive parents noticed I was generally in poor health around 8 months as I was not eating, not crawling, or sleeping, and they became suspicious that I may have issues with my eyes as well. I, then, at 9 months I was diagnosed with both diseases.
Find people with Panhypopituitarism through the map. Connect with them and share experiences. Join the Panhypopituitarism community.