Paroxysmal nocturnal hemoglobinuria
Rubbish health!!
_I was diagnosed with Psoriatic arthritis at age 19. After many medication I was put on enbre ant tbf medication. This worked great for 3 years until my platelets and HB started dropping. _
_I was referred to see a haematologist and after 2 years, 3 soon to 4 bone marrow biopsy, 5 immune suppression medication, 70ish units of blood they still can't diagnose me. The think its Aplastic anemia. ATG booked for August 2017__if Himira doesn't work. _
_while trying to diagnose my bone marrow failure PNH was picked up. My clone size is small but growing. It started at 0.5% and is now 8.8%_
Find people with Paroxysmal nocturnal hemoglobinuria through the map. Connect with them and share experiences. Join the Paroxysmal nocturnal hemoglobinuria community.