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Pemphigoid stories


NOT KNOWING WAS THE WORST


I was diagnoised in 2007 but symptoms began in 2005. I went to an ENT because i could barely breath through my nose. After the standard blood work he found nothing, my doctor was convinced i was mutilating myself because there was no way my nose was ...

Views: 766 by Juanita Jacobs

SHAARI ARTHUR'S STORY


Hi. I am a 55 year old woman with a recent diagnosis of Mucous Membrane Pemphigoid. It is only oral at this point. Fortunately, as of now my symptoms are not too severe and the pain is bearable. I was very fortunate that my dentist was on top of thin...

Views: 661 by Shaari Arthur

AUTOIMMUNE MADNESS!


I assumed the pain and bleeding of my gums were associated with my having Celiac disease.  After a year of watching my symptoms and failed remedies my dentist sent me to an oral surgeon who knew right away what it was. I had a biopsy with immuno...

Views: 654 by Audria Lewis

ANNE GRIFIN'S STORY


I have Bullous Pemphigoid. I have had blisters on my back, stomach, feet, chest, face and in my mouth/gums. It got really bad in my mouth and before being diagnosed and I began treatment, was almost unbearable pain/itching while on my back. I was on ...

Views: 621 by Anne grifin

WHEN WILL IT END?


diagnosed 1988. On prednisone and (intermittently) imuran ever since. I've heard most people cycle out but I have not been so lucky. 

Views: 610 Nov 25, 2015, 5:21 AM by Suz

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