Stories of Pemphigoid

STORY
Pemphigoid stories
I assumed the pain and bleeding of my gums were associated with my having Celiac disease.  After a year of watching my symptoms and failed remedies my dentist sent me to an oral surgeon who knew right away what it was. I had a biopsy with immuno...
Pemphigoid stories
diagnosed 1988. On prednisone and (intermittently) imuran ever since. I've heard most people cycle out but I have not been so lucky. 
Pemphigoid stories
I have Bullous Pemphigoid. I have had blisters on my back, stomach, feet, chest, face and in my mouth/gums. It got really bad in my mouth and before being diagnosed and I began treatment, was almost unbearable pain/itching while on my back. I was on ...
Pemphigoid stories
Hi. I am a 55 year old woman with a recent diagnosis of Mucous Membrane Pemphigoid. It is only oral at this point. Fortunately, as of now my symptoms are not too severe and the pain is bearable. I was very fortunate that my dentist was on top of thin...
Pemphigoid stories
I was diagnoised in 2007 but symptoms began in 2005. I went to an ENT because i could barely breath through my nose. After the standard blood work he found nothing, my doctor was convinced i was mutilating myself because there was no way my nose was ...

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Statistics of Pemphigoid

2 people with Pemphigoid have taken the SF36 survey. Mean of Pemphigoid is 2463 points (68 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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