pemphigus erythematosus
Diagonsed with Lupus originally, but the medicines were not working. After 4 skin biopsies, PE was confirmed. I've been through Imuran, CellCept, Plaquenil, Dapsone, and Plaquenil/Dapsone combined. Have been on steriods since confirmation. Steroids work but wow..the weight gain, high sugar, GERD, and Osteoporosis problems over time are just icky. Starting Rituxan therapy on 11/16/2015. Started a facebook group for PE people as I've only found 2 others with PE globally. I know there has to be more out there!!
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