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Peutz-Jeghers syndrome stories
My name is Dale. I was diagnosed with Peutz Jeghers Syndrome in 1993 when i had my first surgery for obstructing Polyps however i have been carefully watched by the Drs from the age of 1 as my father had this syndome all of his life . I had the early...
Views: 788 Dec 29, 2015, 6:54 PM by Dale
I was 14 when I was diagnosed with this 'gift'. It was the morning after my freshman dance in high school! I woke up in extreme abdominal pain. The day went on and it got worse. I ended up in the local ER. They saw it was an obstruction. They calmed ...
Views: 662 Dec 29, 2015, 6:13 PM by Traci
I was suspected to have PJS around age 5 due to several freckle spots on and in my mouth, been to several doctors. At age 9 went to have my first endoscopy/colonoscopy and several polyps removed. I had a GI bleed from stress Ulcers the ne...
Views: 610 Sep 23, 2016, 1:13 PM by Felix
Hi All,
Thanks for reading my short story!
44 years old, 24 years ago diagnosed with PJS.
Since then had several oparations.
Biggest problems are tied to my small intestine.
I have regular checkups.
Sorry for my poor English sometimes :...
Views: 434 Feb 1, 2017, 2:10 AM by Richard
My granddaughter is 21 years old, and was diagnosed with PJS when she was 15, with genetic testing, and most all the characteristics of the syndrom, including an intussecption requiring a small bowel resection. She also has Tetrology of Fallot,...
Views: 379 May 16, 2017, 8:56 PM by Violbm26
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