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Advice of Peutz-Jeghers syndrome
Have a great primary Dr. that keeps up to date on screenings needed.
Being a volunteer for the dutch organisation: www.Lynch-polyposis.nl
Medication to control Colitis which can make PJS worse when inflammed
Eating in moderation and staying active has helped me feel better about myself.
An active support group on Facebook: www.facebook.com/groups/2519172044
Food Control (avoid chicken and egg)
Follow a strict diet for people that are at risk of bowel obstruction. http://www.clearpassage.com/site-resources/digestive-health-guide.pdf
Making future plans with my affected husband AND enjoying every moment.
Eat food that helps and not harms my body.
Tomar solo agua
My family is a great support system
Have a great support system
Eat 5 small meals a day instead of 3 large ones.
Connecting with others with PJS
Our family that supports us in every way possible.
Find joy in what I have and not dwell on what sucks.
Hacer 7 pequeñas comidas al dia
Try to eat right and take meds everyday and keep up with my doctor
Don't worry about what could happen because that cannot be changed. Only worry about how you will handle it if it does happen.
Yearly Check Ups
Get an Rx for Zofran to take when your feeling at your worst/throwing up/nausea.
A network of doctors that we can go to as much as we like that answer our questions, or sometimes just listen.