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Which advice would you give to someone who has just been diagnosed with Pheochromocytoma?
See some advice from people with experience in Pheochromocytoma to people who have just been diagnosed with Pheochromocytoma
Seek medical advice from an Endocrinologist that has experience in pheochromocytomas and paragangliomas. Do not settle for anyone that is not experienced with these types of tumors! Catch every drop of urine during the 24 hour urine test. Make sure to keep it refridgerated during collection and travel with a cooler during transport to the lab.
Posted Jul 5, 2018 by Anderson 2550
Congratulations! Being diagnosed is probably the biggest hurdle
Now find an expert. There are very few, so be careful! I received treatment that did more harm than good. Take your time....find the right team. Second, third and fourth opinions!
Now find an expert. There are very few, so be careful! I received treatment that did more harm than good. Take your time....find the right team. Second, third and fourth opinions!
Posted Jul 5, 2018 by Helen 2500
First you will be too scared, which is normal. But if you follow the doctors' advice, everything will be fine. Do not worry, that bad period will pass, then you will be followed by beautiful things. You know ... after the rain comes the sun :)
Posted Jul 6, 2018 by Koka 1000
Take time to get your head around it take each day as it comes ask questions that you want to know and research so you understand what's happening
Posted Jul 11, 2018 by Eme lou 3000
