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What is the life expectancy of someone with Pheochromocytoma?

Life expectancy of people with Pheochromocytoma and recent progresses and researches in Pheochromocytoma

Pheochromocytoma life expectancy
4 answers
Most pheochromocytomas are found during autopsy. This condition is a ticking time bomb. Extreme high blood pressure can cause a stroke or heart attack due to surges of adrenaline in the body. Surgery is the only option for those with this condition. After surgery prognosis is very good. A majority of patients need a lower dosage of blood pressure medicine with many individuals no longer needing them. Yearly scans for life are needed to check for reoccurance either at the same site (including in the adrenal bed) or elsewhere in the body. This scan is referred to as the "eye to thigh" scanning.

Posted Jul 5, 2018 by Anderson 2550
If the tumor is found early and proper care is given I would say normal life expectancy.
There may be a genetic mutation ... depending on the specific mutation you may be at risk for reoccurrence or other Cancers.

If you have become metastatic life expectancy isn't so great.

Posted Jul 5, 2018 by Helen 2500
I do not know, I do not have information, nor do I want to know, but I believe that there is no defined average or limit (minimum-maximum), I will say again that it is individual. With me..... 4 years have passed since the operation. And for now everything is OK. I do regular controls once or two times in one year.

Posted Jul 6, 2018 by Koka 1000
I am unsure on this some people go on to live a normal life others don't due to complications the high blood pressure is the biggest complication and most dangerous

Posted Jul 11, 2018 by Eme lou 3000

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PHEOCHROMOCYTOMA STORIES
Pheochromocytoma stories
My  14 year son was diagnosed with the disease in 2013. Went on to have surgery. And found more after having routine scan. Having treatment. And also  hubby snd oldest son and mother inlaw has the gene. 
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Many years ago in the mid 60's and before I was born, my mother was struggling with an unknown health complaint. During her pregnancy with me she was diagonosed with carotid body cluster and secondary malignant tumours. She had an operation to remove...

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Pheochromocytoma forum

PHEOCHROMOCYTOMA FORUM
Pheochromocytoma forum
Good morning to y'all - I'm curious as to if any of you have looked into the story of Steve Kubby?  He was diagnosed with pheochromocytoma in 1968, at 23-years-old.  He began experiencing symptoms of hypertension and palpitations, and was t...

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