World map of Pityriasis Rubra Pilaris


Find people with Pityriasis Rubra Pilaris through the map. Connect with them and share experiences. Join the Pityriasis Rubra Pilaris community.

There are 85 people in the map. View Map of Pityriasis Rubra Pilaris

May interest you


Pityriasis Rubra Pilaris stories


SCOTT'S STORY


  My name is Scott and I’m 42 years old.  I live in SE Michigan and have most of my life.  I have had PRP on my hands and feet for as long as I can remember.  It was not diagnosed until I was 14 and needed stitches on my ha...

Views: 897 Nov 25, 2015, 2:42 PM by Scott

TYPE 4 PRP


Affecting elbows, knees and occasionally patches appearing elsewhere.  Haven't found a treatment that works so just take general care of skin.  

Views: 725 Nov 27, 2015, 6:00 AM by Adam

MY BLOG


MY PRP Story is on my blog at : http://kevsprp.blogspot.co.uk/

Views: 657 Nov 26, 2015, 9:46 AM by Kev

DECEMBER SURPRISE


first little lesion in early December by late January I was full on "red man".  Now on Enbrel with methotrexate and am visibly better I'm now a lovely shade of rosy pink with some newly appearing white spots. I believe I am getting better and th...

Views: 634 May 11, 2016, 4:53 PM by Kendra

PRP ALL MY LIFE


I got PRP when I was 4-6 months, but first diagnosed when I was 13 years. Now I am old and have never had periods without PRP.

Views: 592 Dec 21, 2015, 9:38 AM by Lise

View more

Pityriasis Rubra Pilaris forum


IS THERE OTHERS WITH PRP STARTING AS BABY


I would like to connect with others who have had PRP that began when they were baby

Views: 393 Dec 21, 2015, 10:13 AM by Lise

Ask a question and get answers from other users.

View more