Stories of Pityriasis Rubra Pilaris

Pityriasis Rubra Pilaris stories
Affecting elbows, knees and occasionally patches appearing elsewhere.  Haven't found a treatment that works so just take general care of skin.  
Pityriasis Rubra Pilaris stories
MY PRP Story is on my blog at :
Pityriasis Rubra Pilaris stories
  My name is Scott and I’m 42 years old.  I live in SE Michigan and have most of my life.  I have had PRP on my hands and feet for as long as I can remember.  It was not diagnosed until I was 14 and needed stitches on my ha...
Pityriasis Rubra Pilaris stories
I got PRP when I was 4-6 months, but first diagnosed when I was 13 years. Now I am old and have never had periods without PRP.
Pityriasis Rubra Pilaris stories
first little lesion in early December by late January I was full on "red man".  Now on Enbrel with methotrexate and am visibly better I'm now a lovely shade of rosy pink with some newly appearing white spots. I believe I am getting better and th...

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Question 72
I would like to connect with others who have had PRP that began when they were baby

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Statistics of Pityriasis Rubra Pilaris

0 people with Pityriasis Rubra Pilaris have taken the SF36 survey. Mean of Pityriasis Rubra Pilaris is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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