PORFIRIE FORUM

INFORMATION PROVIDED BY AMBASSADORS

Information about Porfirie provided by ambassadors of the condition.

GENERAL FORUM

General forum of Porfirie

RESEARCH / NEWS

The lastest on Porfirie research. Share your finds with others.

TREATMENTS

Drugs, supplements, therapies and treatments based on scientific studies.

NATURAL TREATMENTS

Treatments scientifically not proven.

SYMPTOMS

Porfirie symptoms. Share your symptoms with others.

PORFIRIE RESOURCES

Useful Porfirie resources. Blogs, websites, support groups, apps...

SICK LEAVE / DISABILITIES

Sick leaves and disabilities. Goverment support.

PORFIRIE COMMUNITY

SUPPORT

Get support from others. Ask for help and help others.

INTRODUCE YOURSELF

Introduce yourself. Tell us about you.

HISTORIE

Opowiedz swoją historię i pomóż innym

PORFIRIA SKÓRNA, PÓŹNA FORUM

GENERAL FORUM

General forum of Porfiria skórna, późna

PORFIRIA OSTRA PRZERYWANA FORUM

GENERAL FORUM

General forum of Porfiria ostra przerywana

PORFIRIA MIESZANA FORUM

GENERAL FORUM

General forum of Porfiria mieszana

PROTOPORFIRIA ERYTROPOETYCZNA FORUM

GENERAL FORUM

General forum of Protoporfiria erytropoetyczna

DZIEDZICZNA KOPROPORFIRIA FORUM

GENERAL FORUM

General forum of Dziedziczna koproporfiria

PORFIRIA ERYTROPOETYCZNA WRODZONA FORUM

GENERAL FORUM

General forum of Porfiria erytropoetyczna wrodzona

PROTOPORFIRIA SPRZĘŻONA Z CHROMOSOMEM X W SPOSÓB DOMINUJĄCY FORUM

GENERAL FORUM

General forum of Protoporfiria sprzężona z chromosomem X w sposób dominujący

HARDEROPORPHYRIA FORUM

GENERAL FORUM

General forum of Harderoporphyria

PORFIRIA Z NIEDOBORU DEHYDRATAZY KWASU Δ-AMINOLEWULINOWEGO FORUM

GENERAL FORUM

General forum of Porfiria z Niedoboru Dehydratazy Kwasu δ-aminolewulinowego