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Living with Poland Syndrome. How to live with Poland Syndrome?

Can you be happy living with Poland Syndrome? What do you have to do to be happy with Poland Syndrome? Living with Poland Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Poland Syndrome

Living with Poland Syndrome

Living with Poland Syndrome


Poland Syndrome is a rare congenital condition that affects the development of muscles and bones on one side of the body, typically the chest and hand. Living with Poland Syndrome can present unique challenges, but with the right mindset and support, individuals can lead fulfilling lives. Here are some strategies and tips for navigating life with Poland Syndrome:



1. Seek Medical Guidance


It is crucial to consult with medical professionals who specialize in Poland Syndrome. They can provide accurate information, diagnose the condition, and offer appropriate treatment options. Your healthcare team may include a geneticist, orthopedic surgeon, physical therapist, and psychologist.



2. Educate Yourself


Take the time to learn about Poland Syndrome, its causes, symptoms, and potential complications. Understanding the condition will empower you to make informed decisions about your health and well-being. Reliable sources such as medical journals, reputable websites, and support groups can provide valuable information.



3. Embrace Self-Acceptance


Accepting oneself is a crucial aspect of living with Poland Syndrome. Remember that your worth is not defined by your physical appearance. Embrace your unique qualities and focus on your strengths. Surround yourself with supportive friends and family who appreciate you for who you are.



4. Connect with Support Groups


Joining support groups or online communities can provide a sense of belonging and understanding. Interacting with others who have Poland Syndrome can offer emotional support, practical advice, and a platform to share experiences. Hearing about others' journeys can inspire and motivate you.



5. Maintain a Healthy Lifestyle


Adopting a healthy lifestyle can positively impact your overall well-being. Engage in regular physical activity that suits your abilities and preferences. Consult with a physical therapist to develop an exercise routine that strengthens your muscles and improves flexibility. Additionally, prioritize a balanced diet, adequate sleep, and stress management techniques.



6. Explore Treatment Options


Depending on the severity of Poland Syndrome, various treatment options may be available. These can include reconstructive surgery, prosthetics, and physical therapy. Discuss with your healthcare team to determine the most suitable treatment plan for your specific needs and goals.



7. Build a Supportive Network


Surround yourself with a network of supportive individuals who understand and respect your condition. Educate your close friends, family, and colleagues about Poland Syndrome to foster empathy and create an inclusive environment. Open communication and honest conversations can help dispel misconceptions and promote acceptance.



8. Seek Emotional Support


Living with Poland Syndrome can sometimes be emotionally challenging. Consider seeking professional help from a therapist or counselor who specializes in supporting individuals with physical differences. They can provide guidance, coping strategies, and a safe space to express your feelings.



9. Advocate for Yourself


Be your own advocate and actively participate in your healthcare decisions. Communicate openly with your medical team, ask questions, and express your concerns. By taking an active role in your care, you can ensure that your needs are met and receive the best possible support.



10. Celebrate Your Achievements


Remember to celebrate your achievements, both big and small. Recognize the progress you make in overcoming challenges and focus on your personal growth. Celebrating milestones can boost your self-confidence and motivate you to continue thriving despite any obstacles.



Living with Poland Syndrome may present unique physical and emotional challenges, but it does not define your potential. With self-acceptance, a supportive network, and appropriate medical care, you can lead a fulfilling and meaningful life.


Diseasemaps
13 answers
Choose a path and go for it.

Posted Dec 3, 2021 by POLAND SYNDROMIGHTIES
Yes of course you can be happy and have a full life

Posted Mar 4, 2017 by Laurie 1011
Of course you can be happy living with Poland Syndrome. As it is a condition you are born with it is something you live with from day 1, so, as opposed to getting a condition later in life, nothing ever changes.

Posted Sep 1, 2017 by Rodney 2000
Live your life and be proud of your difference and how you can assist others.

Posted Sep 8, 2017 by Nanahanim 1700
You are born with PS so it’s just normal for us. Again, personal choice.

Posted Sep 30, 2017 by Deana 2000
Yeah. As others have said. Our bodies are amazing and adapt well. Me personally have not let it stop me achieve anything. I have twice to on charity walks each 100km nonstop taking approximately 27hrs to complete and am proud to say I have stood on the tallest free standing mountain in the world mount Kilimanjaro.

Posted May 27, 2018 by Neil 700
same as other lives, deal with criticism as a child.

Posted Jun 9, 2018 by Mary Fletcher 2500
Just be confident in yourself and know that everybody has something about themselves that they don’t like. This condition will not prevent you from having a long and happy life

Posted Jul 14, 2018 by Michael 3561
Know you are beautiful. Take care of yourself. Surround yourself with encouraging people. Get a good therapist.

Posted Dec 3, 2019 by Steph 1503
How to live with it Well, I was very fortunate. I had a mother in the medical field and back in my day. Nobody knew about anything. It has been quite a journey living with it. The kids in school are mean. But they AR all too young to understand what you're going through? And as adult It hasn't been the best. I'm sure it could have been easier with my marriages with the men I went out with. Very challenging situation

Posted Feb 14, 2020 by Lori 2500
Accept who you are always ..its good to be different

Posted Nov 29, 2020 by Rainbow 1100
Avoid strenuous activities and visit your doctor in severe cases

Posted Jan 30, 2022 by Onipede 2500

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quando eu era criança eu sentia uma pessoa normal ate que fui virando adolescente eu vi que um lado do peito não desenvolvia  e que eu era a unica pessoa que era assim e não conhecia ninguem assim ai achei melhor esconder meu problema pois tinha ...

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