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Poland Syndrome
Advice
Advice of Poland Syndrome
My son has PS, not me. He is born May 2014
by Anette Nilsson Gunder
Connecting with others through Facebook Communities
by PIP-UK
To find out that it has a name.
by Sólveig María Sigurbjörnsdóttir
Johns Hopkins Hospital with Dr. John Ingari
by Alyssa
La formación de la Academia me hace sentir bien, estoy mejorando mi cuerpo poco a poco en lugar no entrenar el pectoral no aumentar la diferencia.
by Mansuer de Lâvor de Freitas Maciel
avoir pu mettre un nom sur cette pathologie
by thoraval
Support groups on Facebook
by Shannon
Adapt and overcome
by Roberto
esposa
by Max
Yoga
by Blissful
Being treated as a "normal" person
by Eddie Finn
Being treated as a "normal" person
by Eddie Finn
My first long-term girlfriend was not bothered at all by my birth defect. In fact, she made me feel very loved and special.
by John
Prothesis in 1999
by Edouard
Like myself for who I am, faults and all
by Sharon
finding out what i have
by Martin Atkins
The Poland Syndrome Support (USA) Group on Facebook!
by Jim
Cirurgia reparadora
by ale
My mom let's me do what all kids do.
by Aydin
Getting through teenage years
by Michael
Family support
by Manuel
You're not alone, there are others like you.
by Jenn
Telling my friends after hiding it for 20+ yrs
by Billy
Dont allow it to define who you are
by Julabeeb
Therapy
by Steph
hacer ejercicio ir al gimnasio
by Victorycri
Mi familia, sin su apoyo realmente no sería nada
by Cristóbal Galleguillos
My little guy is right side affected.
by Musqua1316
Discovering the condition had a name
by Sandy
Having a mother that supported me
by
My world's on fire how about yours
by Kemaltolgahan
Also had symbrachydactyly
by Cass
I played sports when I was a child
by Scott
Being a mother
by Hayley
Being a mother
by Hayley
Being onstage. I was not my disfigured hand. I had a real life.
by Jane
Understanding the links between my condition and other health issues
by Sharon
Getting a diagnosis
by Vanessa
Love
by TJK
Having a great support network of friends and family who are understanding and caring
by niamhsorcha
My Mum and Dad never make me feel different to others
by CFrost
Having confidence and loving Who You Are
by Lori
Realizing that other people either didn't notice my torso asymmetry or didn't care about it.
by Kellie
Independence.
by Adrian Bendall-Charles
Take my medicine
by Elizabethwash1
Make sport. Any kind of sport.
by Liviu Mihai
Talking to parents in similar situation has helped
by Anette Nilsson Gunder
Fundraising for PIP-UK to help others with Poland Syndrome
by PIP-UK
My blog- ask for the URL if you want!
by Alyssa
Encontrar a alguien que te ama como eres, y el valor de esa persona por ello.
by Mansuer de Lâvor de Freitas Maciel
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