Support from Prader-Willi Syndrome Association
I am speaking on behalf of my son Bill. He is delightful and fun, but sufferes from the hunger and anxiety that food and unscheduled events can bring. He has a wonderful sense of humor (about everything except food). He likes to participate in research and travel.
FEEL FREE TO CONTACT ME, PRESIDENT OF PWSA OF OREGON AND WASHINGTON. I would love to visit with you. We have at least 2 events each year to help families meet each other. It's so encouraging to have the friendship and support of other's who know what you are dealing with. We can help you find support and resources for you, your doctors, therapists, families, medical insurance, etc.
Vonnie Sheadel
360-887-3304
vsheadel@gmail.com
www.pwsaoregon.org
Facebook: Prader Willi Syndrome Oregon/Washington
_You will also find volumes of resources at PWSAusa.org for parents, caregivers and doctors. _
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