> Retinitis pigmentosa > Stories

It is what it is.

It's pretty simple. 

Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend to be fighters though, it's just in our blood along with some not so great genetics.

I've taught special education in America (AZ), South Korea, and now Qatar. We have to work harder but it doesn't mean we can't live equally fulfilling lives. Sure, somethings are just out of reach for us. That's just how it is. Struggle, understand, and overcome. 

Just be patient with yourself.

 

-Ian

World map of Retinitis pigmentosa


Find people with Retinitis pigmentosa through the map. Connect with them and share experiences. Join the Retinitis pigmentosa community.