Robinow syndrome

World map of Robinow syndrome

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Robinow syndrome stories

ROBINOW SYNDROME FOUNDATION

I am the Executive Director of the Robinow Syndrome Foundation. In 1995 my first child was born and diagnosed. In 2000, it was confirmed he has the Recessive form of Robinow Syndrome. I met several other families in the USA during a Robinow Syndrome ...

Views: 952 Mar 27, 2016, 10:46 PM by Kim

MY STORY? DO WE HAVE ALL DAY?

Not enough time in the world to explain my life to this point. Alot of everything. Not much I haven't experienced in terms of emotion and external conflict. I have 3 brothers and one sister, a non-existant mother, and a non-biological, but been there...

Views: 473 Mar 27, 2016, 11:33 PM by Adam

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