Stories of Robinow syndrome

STORY
Robinow syndrome stories
I am the Executive Director of the Robinow Syndrome Foundation. In 1995 my first child was born and diagnosed. In 2000, it was confirmed he has the Recessive form of Robinow Syndrome. I met several other families in the USA during a Robinow Syndrome ...
Robinow syndrome stories
Not enough time in the world to explain my life to this point. Alot of everything. Not much I haven't experienced in terms of emotion and external conflict. I have 3 brothers and one sister, a non-existant mother, and a non-biological, but been there...

Tell your story and help others

Tell my story

View more

Robinow syndrome forum

QUESTION

Ask a question and get answers from other users.

Ask a question

View more

Statistics of Robinow syndrome

0 people with Robinow syndrome have taken the SF36 survey. Mean of Robinow syndrome is 0 points (0 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Robinow syndrome

Join the map