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Which advice would you give to someone who has just been diagnosed with Russell Silver Syndrome?

See some advice from people with experience in Russell Silver Syndrome to people who have just been diagnosed with Russell Silver Syndrome

Russell Silver Syndrome advice
3 answers
Try not to google. Search on facebook for the Russell-Silver groups, the real life stories are much better to read than some medical professionals point of view.
Speaking to someone whos been through it first hand is the best form of knowledge!

Posted Aug 21, 2017 by Scarlett 2100
There's a lot of information that would will most likely overwhelm you. Take it slow, and be sure to ask your doctor questions if you don't understand anything.

Posted Aug 21, 2017 by Clare 900
Translated from portuguese Improve translation
Do what makes you happy, no matter with the opinion of others. And follow the guidance of the doctor

Posted Aug 21, 2017 by Debora Petry 1151

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My son was born in 2010. He was failing to thrive no matter how much i fed him. When he was 3 we finally had genetic testing done our doctor was actually looking for something else when they discovered mupd7.  Hes now 6 years old and is also auti...
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Our daughter Nancy Beatrice Nolan joined the world 3 weeks early on 19th August 2014, weighing in at 5lb 4.5oz.  In the weeks and months that followed Nancy failed to grow or gain weight as you would expect a baby would . She wasn’t taking much m...
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IZAIAH  MY SON IZAIAH WAS BORN IN DECEMBER 2013 HE WAS BORN WITH HLHS AND SHONES SYNDROME BUT HES HAD LOTS OF HEART SURGERY AND HASN'T BEEN TO WELL SO WE PUT HIM NOT GROWING DOWN TO THAT BUT THIS YEAR I ASKED ABOUT DWARFISM AND WE WENT TO SEE AN EN...

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Russell Silver Syndrome forum

RUSSELL SILVER SYNDROME FORUM
Russell Silver Syndrome forum
Hello I'm new here and have been searching for support with RSS I have never met anyone that has it and I've been very alone with this all my life 

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