World map of Sarcoidosis


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Sarcoidosis stories


FRANK RIVERA'S STORY


My story continues and I wonder how and why I go through what I do... Then there is that one person that calls me or sees me and either thanks me or just gives me that Hug that just means I am doing something right!!! I have been going through some r...

Views: 1415 Jan 31, 2016, 9:38 AM by Frank Rivera

MADDY' S JOURNEY DEALING WITH SARCOIDOSIS, HODGKINS LYMPHOMA & FIBROMYALGIA


Who I'm I- My name is Madeline, 50yrs old, born in NY raised in Puerto Rico. Living in Massachusetts. Single mom of two amazing son's, a 30 yr old and a 23 yr old US Marine. My illnesses are-Cancer survivor, Hodgkins Lymphoma diagnosed in 1992 while...

Views: 1303 Feb 1, 2016, 5:24 PM by Maddy Martinez

I MAY HAVE SARCOIDOSIS BUT IT DOES NOT HAVE ME!


My name is Barbara Weber and I suffer from this disease called Sarcoidosis. It affects your body’s organs for example skin, heart, kidneys, but mainly the lungs. In people who have Sarcoidosis, the inflammation doesn't go away. Instead, some of...

Views: 1254 Feb 8, 2018, 7:01 PM by Barbara

ACCIDENTAL DIAGNOSIS


My dr diagnosed me with COPD in 2013 but my cough was dry and breathing treatments weren't helping much.  She did blood work and said I needed vitamin d. So I began taking it and a lump came up on my wrist and kept growing.  She referred me...

Views: 931 Jan 31, 2016, 11:13 PM by Debbie

MY JOURNEY


I was dxd after I had a bad tickle in my throat that wouldn't go away, I coughed so much that I cracked a rib that lead to shingles, I thought I had pneumonia & went to see my pcp, he ordered a chest X-ray which showed the grandulomas, the Dr ass...

Views: 809 by Annie

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Sarcoidosis forum


CALLING ALL RICHMOND VA SURVIVORS


#Teamandreafight will be hosting a sarcoidosis awareness Day. April 30,2016. Games. Raffles. Guest speakers. Holistic remedies. We're even selling inflammation reducing lemonade! Bake sale and more. JOIN US!! Survivors please visit our facebook page ...

Views: 601 Mar 18, 2016, 4:12 PM by teamandreafight

NEUROSARCOIDOSIS


I am looking for other with Neurosarcoidosis, my Dr.s have all told me its a rare type of Sarcoidosis and my also being a white male Im very more a rare bird, are there any others, I am also open to talk to anyone

Views: 596 Jan 15, 2016, 10:42 PM by Wayne

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