Sarcoidosis

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My journey

IN JUNE OF 2008 I BECAME VERY ILL MY LEGS WERE LIKE BALLOONS, I COULDN'T WALK FOR THE PAIN AFTER SEEING NUMEROUS DOCTORS I WAS TOLD I NEEDED A LUNG BIOSPY TO CONFIRM MY DIAGNOSIS. I WAS TOLD I EITHER HAD LYMPHOMA OR SARCOIDOIS. MY BIOSPY CONFIRMED SARCOIDOIS. I NOW HAVE IT IN MY LUNGS MY JOINTS AND MY NERVOUS SYSTEM.

I'm so sorry to hear this. I also have it in my lungs and Neuro sarcoidosis. I just lost the hearing in my left ear. Remicade worked great for the lungs for me. It doesn't work for the brain or nervous system. I'm also on steroids now.

Posted 8 years ago by Angel

Itâs been a while since you posted your story. I hope things are getting better for you!

Posted 5 years ago by Rika

My chronic pain continues daily my pain in my nerves and bones is the worst. My heart breaks for anyone suffering from this disease

Posted 5 years ago by Dorothy

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