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Living with Scleromyxedema. How to live with Scleromyxedema?

Can you be happy living with Scleromyxedema? What do you have to do to be happy with Scleromyxedema? Living with Scleromyxedema can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Scleromyxedema

Living with Scleromyxedema
2 answers
This is one of the hardest things as unless you are under IVIG treatment it will be a difficult time just doing ordinary things like opening bottles or ring-pull cans which there are implements to aid this but as I found out even this could still sometimes have problems as the hands get painful to handle tools. The palms of my hands were like leather to touch but it was painful using tools so with scleromyxedema being happy would be difficult unless you are on IVIG to alleviate symptoms.

Posted Jan 18, 2019 by Rob 2750
Follow doctor's advice and live as normal a life as you find comfortable.

Posted Jan 26, 2019 by Kay 2500

Living with Scleromyxedema

Scleromyxedema life expectancy

What is the life expectancy of someone with Scleromyxedema?

4 answers
Celebrities with Scleromyxedema

Celebrities with Scleromyxedema

2 answers
Is Scleromyxedema hereditary?

Is Scleromyxedema hereditary?

4 answers
Is Scleromyxedema contagious?

Is Scleromyxedema contagious?

4 answers
ICD9 and ICD10 codes of Scleromyxedema

ICD10 code of Scleromyxedema and ICD9 code

4 answers
Natural treatment of Scleromyxedema

Is there any natural treatment for Scleromyxedema?

2 answers
Scleromyxedema diet

Scleromyxedema diet. Is there a diet which improves the quality of life of ...

3 answers
History of Scleromyxedema

What is the history of Scleromyxedema?

3 answers

World map of Scleromyxedema

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Stories of Scleromyxedema

SCLEROMYXEDEMA STORIES
Scleromyxedema stories
I will be coming up on my 2nd year since diagnosis in about July this year. I was unable to do a lot of things like bending down to pick something from the floor , eating a meal took an hour or more , my mouth shrunk so badly I couldn't get my dentur...
Scleromyxedema stories
As is surely with the rest of you scleromyxedema members, the mystery is huge. Not sure when I truly started with this disease but it's become official in summer of 2021. Symptoms that were thought to be rheumatoid arthritis, walking difficulties, ...

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Scleromyxedema forum

SCLEROMYXEDEMA FORUM

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