Story about Smith-Lemli-Opitz Syndrome .

My daughter Robyn

Feb 10, 2016


I added my daughter Robyn she was born on the 07/10/13 and lived for 26 hours. I have just found out 2 years on that she had smith-lemli-opitz syndrome and that i'm a carrier. I found out at my 20 week scan that my baby was very ill and had a major heart condition they couldnt tell me much more just that my baby was small and  could die before during or after birth. when she was born she had much more wrong than any one had thought she had a major heart condition, small lungs, her kidney were tiny and not in the right place and not working she had bad club feet as well as 6 fingers on each hand plus many more things wrong she was a little fighter in my eyes and even tried to cry when she was born.

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