There are 38 people in the Spinal muscular atrophy with respiratory distress type 1 map

Spinal muscular atrophy with respiratory distress type 1 causes

Which are the causes of Spinal muscular atrophy with respiratory distr...

Is Spinal muscular atrophy with respiratory distress type 1 hereditary?

Is Spinal muscular atrophy with respiratory distress type 1 hereditary...

Prevalence of Spinal muscular atrophy with respiratory distress type 1

What is the prevalence of Spinal muscular atrophy with respiratory dis...

Spinal muscular atrophy with respiratory distress type 1 diet

Is there a diet which improves the quality of life of people with Spi...


Stories of Spinal muscular atrophy with respiratory distress type 1

STORY
Spinal muscular atrophy with respiratory distress type 1 stories
Our son had SMARD.  He died in 2005 aged 18 weeks.
Spinal muscular atrophy with respiratory distress type 1 stories
Truett is technically undiagnosed, although some doctors at Childrens Hospital of Colorado and Johns Hopkins Hospital in Baltimore believe he has a unknown version of SMARD. On the SMARD gene, he has one variance and one "normal" spelling. True...
Spinal muscular atrophy with respiratory distress type 1 stories
Kate started showing symptoms at 6 weeks old and passed away at 12.5 weeks old.  Her official SMARD1 diagnosis wasn't received until 2 weeks after her death.  her full story can be found here:  http://karryonkate.blogspot.com/p/about-...

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Spinal muscular atrophy with respiratory distress type 1 forum

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Statistics of Spinal muscular atrophy with respiratory distress type 1

1 people with Spinal muscular atrophy with respiratory distress type 1 have taken the SF36 survey. Mean of Spinal muscular atrophy with respiratory distress type 1 is 1240 points (34 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Spinal muscular atrophy with respiratory distress type 1