My TENs battle
I had TEN through being treated with a chemo drug (Rituximab )given for another extremely rare disorder TTP ( Thrombotic Thrombocytopenia Purpura ) Drs were unsure for a while what it was , before diagnosis . I lost 90% or more of my skin , hand nails , toe nails , and hair loss . My eyes have been affected as have most people & Also nerve endings within the body . But feel blessed to tell the story.
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