Stories of Stevens Johnson Syndrome

Stevens Johnson Syndrome stories
I have suffered from fibro for about 10th now. I was officially diagnosed 5yrs ago. It's a daily struggle but try not to push yourself too hard. Take time for you, yoga is great so is wwhatever relaxes you like reading or watching a movie. 
Stevens Johnson Syndrome stories
I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
Stevens Johnson Syndrome stories
I was in a construction accident and blew my knees out where they were bone on bone I received 3 injections of Euefleux shots and after the second shot I broke out with blisters and hives nobody knew what they were I was treated for three and a half ...
Stevens Johnson Syndrome stories
Hello I am a mum whose little boy at age 7 went through Tens due to carbamazapine. He lost 100% of his skin and all his nails and hair  he had several infections that resulted in hypothermia and the loss of part of his big toe and 3 adjoining t...
Stevens Johnson Syndrome stories
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...

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Statistics of Stevens Johnson Syndrome

11 people with Stevens Johnson Syndrome have taken the SF36 survey. Mean of Stevens Johnson Syndrome is 1563 points (43 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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