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  2. Stevens Johnson Syndrome
  3. Advice
El apoyo de la familia fue muy importante para sobrellevar la enfermedad, levantarle el animo siempre...hablarle de su familia y la escuela
by Jennifer Katherine Acan Vanegas Cajina
taking my meds on time using my Mango Health app.
by Rebecca
Getting plenty of rest
by Riley
Taking Allegra Allergy Medicine when the sun makes my body itch, using Eucerin too!
by Lorna Perry
Friends and their support
by Jill Bouse
being outside a lot to slowly become strong again
by Amy
Vitamin D, B, & iron. If I miss my vitamin intake I feel fatigued and get a lot of joint pain
by Jody
Support from other parents whose children have been through SJS
by Lorraine
Blood serum tears. They are made out of my own blood and have virtually healed my dry eye syndrome!
by Khaliah
El tratar a las personas con esta patología me ha permitido saber que el tratar de dar la mejor calidad visual y a la vez brindando el cuidado adecuado de la córnea ante esta eventualidad evitamos la llegada de opciones quirúrgicas a veces o en algunos ca
by Carlos Maldonado
My wifes support throughout this ordeal was invaluable.
by Susyn Hoolihan
God
by Kirsten
Keeping as stress free as possible
by Sophie
Good care of TENpatient in hospitals (iVIG) and ones own attitude
by Pirjo
sufficient amounts of d vitamin
by Lena
Trying to stay positive.
by Stephanie
Removal of lashes
by Michelle
I have good people to support me.
by Robin
No junk food
by Josie
3 weeks of the drug Qsymia almost killed me.
by NormNorm22
Professor
by Debbie
I'm living with it 19 years
by Nabil
I'm living with it 19 years
by Nabil
Dios
by Karen
Zeit heilt Wunden und Kopf.
by Wiens
Doterra Essential oil products for my skin and hair
by Jo
El apoyo incondicianal de mi pareja y su comprensión
by Rosy
I accepted that it happened
by Theresa
Amniotic membrane grafting
by Jtolles
El suministro de medicamentos para contrarestar la infeccion, colistine.
by Jennifer Katherine Acan Vanegas Cajina
being honest with my doctor
by Rebecca
My Mom who takes care of me
by Riley
Keep my eyes well lubricated so they don't burn.
by Lorna Perry
Essiac tonic has helped energy and sinus problems and depression
by Jill Bouse
talking to a priest about what really matters in life
by Amy
Focus on the positive - all the horror stories of SJS can be distracting. Your life has changed, only YOU control how you feel, how you heal. Your family may not understand how you feel but you don't have to keep reminding them. They love you. Love them
by Jody
Researching
by Lorraine
Coconut oil. I has rejuvenated my skin. I also eat a tablespoon of it to coat my throat and it makes swallowing food easier. I also use it in my hair to help it stay moisturized. It's amazing for almost every part of your body.
by Khaliah
La confianza que los pacientes depositan en mi persona hacen que le ponga más empeño y amor a mi trabajo
by Carlos Maldonado
Jesus
by Kirsten
Taking methotrexate for the last month
by Sophie
Building up own language peer group in Facebook
by Pirjo
peer group Elisabeth
by Lena
Having a great support system of online friends.
by Stephanie
Contacts
by Michelle
My hospital and it's wonderful staff
by Robin
Being able to educate others
by Josie
I was in multiple organ failure after developing TENS.
by NormNorm22
Sheffield children's hospital
by Debbie
Feel appart from that
by Nabil