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Living with Stickler syndrome. How to live with Stickler syndrome?

Can you be happy living with Stickler syndrome? What do you have to do to be happy with Stickler syndrome? Living with Stickler syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Stickler syndrome

Living with Stickler syndrome
4 answers
Yes, even if you lose your sight or hearing, it's very possible to have a long, happy life. But if you are sedentary, you're going to be miserable. You MUST keep moving if you have Stickler.

Posted Mar 9, 2017 by Lara 1003
Bealive in yourself

Posted Mar 9, 2017 by Agustin y Juan 1000
Yes you can be happy

Posted Mar 21, 2017 by Scott 1000
Live as normal as a possible life you can. Challenge yourself and participate in activities and interact with others. See specialists who can treat your various symptoms. Often with complex vision issues going to research hospitals specialty group practices can be beneficial

Blindness and other organizations with support groups are also beneficial. Find a hobby and local groups who share common interests to participate or volunteer with for socialization. Consumer organizations in disabilities can help you find resources and people who have similar experiences with you.

Learn how to laugh at oneself and silly things in life. Laughter is the best medicine.

Volunteer, keep active. Find what your interests and strengths are and pursue a vocation in an area that will challenge and let you succeed. Realize adaptive equipment is not a weakness, but allows you to do what your peers do, but just in a different manner.

Be giving of time and talents and life seem to give you friends and people who can support you during difficult challenges.

Let yourself define you, not your condition. Everyone has challenges and you can adapt and let physical challenges mold you into a compassionate and empathetic person.

Posted Nov 18, 2018 by Carl 1800

Living with Stickler syndrome

Stickler syndrome life expectancy

What is the life expectancy of someone with Stickler syndrome?

6 answers
Celebrities with Stickler syndrome

Celebrities with Stickler syndrome

2 answers
Is Stickler syndrome hereditary?

Is Stickler syndrome hereditary?

4 answers
Is Stickler syndrome contagious?

Is Stickler syndrome contagious?

4 answers
ICD9 and ICD10 codes of Stickler syndrome

ICD10 code of Stickler syndrome and ICD9 code

2 answers
Natural treatment of Stickler syndrome

Is there any natural treatment for Stickler syndrome?

2 answers
Stickler syndrome diet

Stickler syndrome diet. Is there a diet which improves the quality of life ...

5 answers
History of Stickler syndrome

What is the history of Stickler syndrome?

2 answers

World map of Stickler syndrome

Find people with Stickler syndrome through the map. Connect with them and share experiences. Join the Stickler syndrome community.

Stories of Stickler syndrome

STICKLER SYNDROME STORIES
Stickler syndrome stories
My name is Anya. I am a mother of two children. My daughter was born with a smal jaw and an open palates. She has Stickler. We live in Netherlands and will be glad to meet other families with Stickler exprience. Best regards, Anya.
Stickler syndrome stories
New to this site and find it great that I can connect with other sufferers. I'm Kim, I'm 23 almost 24 years old. I suffered my first retinal detachment in April 2014 and have since had 7 operations on my eyes - 5 to the left eye which had the detachm...
Stickler syndrome stories
I was born in 1965.  I was approximately three years out when it was determined I had neurosensory hearing loss in both ears.  I had speech therapy in elementary school, as I could not correctly pronunciate any words with an "R".  I had braces in ...

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