Stiff Person Syndrome

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Me. :)

> My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. Causing the muscles in my body to become stiff and/or spasm which is extremely painful. I can no longer completely care for myself. Because of this I've have to live with my parents. I am currently being treated with IV immunoglobulin (IVIG) for 6 hours for 2 days every 3 weeks. I take multiple muscle relaxers and pain killers medications to try to keep the pain and spasms under control. Some days are better than others, but I live in pain 24/7. But, it could be worse!!

Hi Stacy. Iâm Susan Greenberg. I have a similar combo. DM type 1, toxic thyroid nodule, now fully ablated thyroid, and SPS just diagnosed. Iâm looking for a Doctor that can see my whole picture, not just their specialty. Wishing you lots of good days!

Posted 6 years ago by susan

Thanks Susan! I wish you the same! Letâs hope our SPS and all other problems progress slowly!! ð

Posted 6 years ago by Stacy

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