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Which advice would you give to someone who has just been diagnosed with Thalassemia?

See some advice from people with experience in Thalassemia to people who have just been diagnosed with Thalassemia

Thalassemia advice
2 answers
- Für Eltern: Nicht verzweifeln. Thalassämie major ist gut konservativ behandelbar. Die Kinder werden in die Behandlungs- und Transfusionsroutine hinein wachsen.
- Für Betroffene mit Alpha- oder Beta-Thalassämie minor oder anderen Varianten: Wappnet Euch mit Geduld, die meisten Ärzte werden ratlos sein. Die Thalassämiehilfe ohne Grenzen hilft bei der Suche nach Fachärzten oder geeigneten medizinischen Einrichtungen. Lernt so viel wie möglich über Eure Krankheit. Gewöhnt Euch daran, dass 99 Prozent der Ärzte in Euch eingebildete Kranke sehen werden, weil ihnen noch die Instrumente fehlen, um Euch effizient zu helfen.
- For parents: do not despair. Thalassemia major can be treated well conservatively. The children will grow into the treatment and transfusion routine.
- For sufferers with alpha or beta thalassemia minor or other variants: Arm yourself with patience, most doctors will be clueless. The Thalassaemiehilfe ohne Grenzen will be helping to find specialists or appropriate medical facilities. Learn as much as you can about your illness. Get used to the fact that 99 percent of our doctors will see you as hypochondriacs because they still lack the knowledge to help you efficiently.
- Für Eltern: Nicht verzweifeln. Thalassämie major ist gut konservativ behandelbar. Die Kinder werden in die Behandlungs- und Transfusionsroutine hinein wachsen.
- Für Betroffene mit Alpha- oder Beta-Thalassämie minor oder anderen Varianten: Wappnet Euch mit Geduld, die meisten Ärzte werden ratlos sein. Die Thalassämiehilfe ohne Grenzen hilft bei der Suche nach Fachärzten oder geeigneten medizinischen Einrichtungen. Lernt so viel wie möglich über Eure Krankheit. Gewöhnt Euch daran, dass 99 Prozent der Ärzte in Euch eingebildete Kranke sehen werden, weil ihnen noch die Instrumente fehlen, um Euch effizient zu helfen.
- For parents: do not despair. Thalassemia major can be treated well conservatively. The children will grow into the treatment and transfusion routine.
- For sufferers with alpha or beta thalassemia minor or other variants: Arm yourself with patience, most doctors will be clueless. The Thalassaemiehilfe ohne Grenzen will be helping to find specialists or appropriate medical facilities. Learn as much as you can about your illness. Get used to the fact that 99 percent of our doctors will see you as hypochondriacs because they still lack the knowledge to help you efficiently.

Posted Jan 24, 2018 by Jürgen M. 6070

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