Story about Trisomy 13 Syndrome / Patau Syndrome .

Jeremiah

May 19, 2017

By: Gemma


Pregnant with our 4th child, some concerns where seen at 20 week scan. Eventually leading to the diagnosis of Trisomy 13..Currently 30 weeks pregnant and taking each day as it comes. Jeremiah has Spina Bifida, causing under developed cerebellum, Dextrocardia, his heart is also enlarged on the right side, he has a dialated kidney which looks to be surrounded with fluid, bilateral cleft lip and pallet, fingers are clenched and he has rocker bottom feet. But he is still fighting. We are told by health professions that there won't be anything they can do to save him, so now we live in hope that he makes it through birth and we can get to hold him and feel his breath on us at least.. Any and all time we have with our little man is precious. But I still live in hope, that by some miracle Jeremiah comes out stronger than anyone ever expected and proves everyday wrong, as his mother that hope with never be lost..

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