See some advice from people with experience in Truncus Arteriosus to people who have just been diagnosed with Truncus Arteriosus

▷ Which advice would you give to someone who has just been diagnosed with Truncus Arteriosus?

Stories of Truncus Arteriosus

TRUNCUS ARTERIOSUS STORIES

VIEWS

BY

It's my nearly 10yrs old that has ta1 so far has had 3 ohs, 1st one at 15 days old last 2 she was 5yrs old had to do 3rd after 2nd repair didn't go to well and resulted in tilly now having constant migraines head and tummy also croup. She's on meds f...

348

9/11/17, 2:59 PM by Julie

MY SON JACOB

APRIL 27TH 2017 my son jacob was born in mitchell sd. Within hours of his birth he was flown to sioux falls sd after discovering his heart condition. The very next day he was flown to Omaha children's hospital, in route to the hospital his intestines...

345

5/21/17, 5:57 PM by Merri

KAI - HEART WARRIOR

My nephew Kai was diagnosed 3 weeks after birth. My sister, Tanja, took him to his pediatrition after she noticed he was sleeping most of the time and gained little to no weight as he mostly fell asleep during feeds. He was diagnosed almost immed...

326

3/8/18, 12:24 AM by Carla

CHRISTINE'S STORY

I'm 26 and was born with the condition. I have had two surgeries and a procedure to have a stent put in, a ventricle cleared out, and a melody valve.

315

3/7/18, 9:54 PM by Christine

39 AND COUNTING...

Truncus Arteriosus type II, 1979 vintage, born and bred in Chile. Had my 1st open-heart surgery in 1981 in San Francisco (USA) and the 2nd one in 1991, in Boston (USA). Might have the 3rd one towards the end of this year (2018) but the jury's sti...

Which advice would you give to someone who has just been diagnosed with Truncus Arteriosus?