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Is it easy to find a partner and/or maintain relationship when you have Tuberous Sclerosis?

People with experience in Tuberous Sclerosis give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Tuberous Sclerosis. What are the possible difficulties in having a relationship?

Couple and Tuberous Sclerosis
4 answers
I think what I've seen is that sometimes my husband feels like he can't help me and feels like he should be able to help me when it comes to anything with my disease. I think you just take it a day at a time I know I am about to go through another surgery here in October a partial nephrectomy where they are going to remove part of my kidney and the AML and if they grow over a certain margin at least what my urologist said they can hemorrhage which I've had happen before. Also, I just feel if you talk it out and have communication with your partner and learn about it and like for me I reassure him that it's going to be okay.

Posted Sep 11, 2017 by AMusicGirl 700
have no understanding the use for the question medically. what’s a disability to one, can be a blessing to another. that’s more of personal non scientific or morally good thought provoking kind of questions this survey should cover

Posted Jun 17, 2020 by Nick Fn Blum 2640
Translated from spanish Improve translation
Difficult to find? I think not, depends on your self-esteem and desire to achieve all that you want , and keep it ? Depends on both parties, and have love...with love everything is possible

Posted Sep 19, 2017 by claudia 2020
Translated from spanish Improve translation
I am not a partner now, but don't attribute it to the illness, that condition or circumstance, rather it is by other factors, if you think q is a little likely to feel vulnerable to have these growths on your face because they attack the self-esteem, but always always we must First want to us and there sure we will find someone that we want.

Posted Oct 3, 2017 by PAOLA 2500

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