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Which advice would you give to someone who has just been diagnosed with Vasculitis?
See some advice from people with experience in Vasculitis to people who have just been diagnosed with Vasculitis
There are two type of people: those with the compassion gene and those without. You will find out who they are when you have to cancel or change plans the first time because of your disease. Don't fret over the non-compassion folks, and you'll be surprised at who they are. They could even be family members. Some of mine are. On the flip side, you will find the BEST friends come out of the woodwork to support you. Cherish them and ditch the others and DON'T LOOK BACK.
Joining the Vasculitis Foundation has also been one of the best decisions I made. Many long distance friendships online have formed and solidified at the meetings and symposiums. Join and be vocal about what you learn. Join the Facebook groups too. Lots of things shared become knowledge to take to doctors who may not know some new method or workaround.
Joining the Vasculitis Foundation has also been one of the best decisions I made. Many long distance friendships online have formed and solidified at the meetings and symposiums. Join and be vocal about what you learn. Join the Facebook groups too. Lots of things shared become knowledge to take to doctors who may not know some new method or workaround.
Posted Feb 28, 2017 by Patricia Youngross 1000
Find others, feel less alone and learn about your illness so you can help yourself cause we are rare and much alone and we have to look after each other and ourselves to keep going
Posted Mar 30, 2017 by Annie Ann-Magritt 1000
Translated from spanish
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The most important thing at first is to find a good doctor with experience in the disease and that you understand that the treatment is personalized, the guidelines are general but should be adjusted to each person because all bodies are different. And always have positive thoughts. Change of doctor if the symptoms do not subsides.
Posted Sep 12, 2017 by Virginia 2000
