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Living with Von Hippel-Lindau Disease. How to live with Von Hippel-Lindau Disease?

Can you be happy living with Von Hippel-Lindau Disease? What do you have to do to be happy with Von Hippel-Lindau Disease? Living with Von Hippel-Lindau Disease can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Von Hippel-Lindau Disease

Living with Von Hippel-Lindau Disease
4 answers
Have hope. Believe in a future.

Posted May 16, 2017 by Kerry-Anne 1000
Yes you can be happy. Take one day at a time. Its out of your control. Dont worry
Get tested yearly.

Posted May 16, 2017 by Paul 1100
Living with VHL is extremely hard and depressing. I currently still cannot be happy living with this disease. I've tried everything and nothing helps me be happy about this at all.

Posted May 17, 2017 by Terry 600
Yes, you can absolutely be happy living with VHL. If you are feeling down due to loss of physical capacity or cognitive abilities, talk to your physician about medication to help before you fall into a deep depression. It can be very disheartening to get 'bad news' at every appointment, especially when we average 6+ appointments per year. Count your blessings. I remind myself often that my situation could always be much worse. I am not terminally ill. In most cases, a surgical procedure can be performed to remove the tumor. Keeping a positive attitude is 99% of the battle! You'll have bad days, we all do - but our life expectancy has increased greatly the past several years, and the miracle of modern medicine is amazing!

Posted May 17, 2017 by Bobbi 1000

Living with Von Hippel-Lindau Disease

Von Hippel-Lindau Disease life expectancy

What is the life expectancy of someone with Von Hippel-Lindau Disease?

6 answers
Celebrities with Von Hippel-Lindau Disease

Celebrities with Von Hippel-Lindau Disease

2 answers
Is Von Hippel-Lindau Disease hereditary?

Is Von Hippel-Lindau Disease hereditary?

3 answers
Is Von Hippel-Lindau Disease contagious?

Is Von Hippel-Lindau Disease contagious?

3 answers
ICD9 and ICD10 codes of Von Hippel-Lindau Disease

ICD10 code of Von Hippel-Lindau Disease and ICD9 code

2 answers
Natural treatment of Von Hippel-Lindau Disease

Is there any natural treatment for Von Hippel-Lindau Disease?

1 answer
Von Hippel-Lindau Disease diet

Von Hippel-Lindau Disease diet. Is there a diet which improves the quality ...

4 answers
History of Von Hippel-Lindau Disease

What is the history of Von Hippel-Lindau Disease?

1 answer

World map of Von Hippel-Lindau Disease

Find people with Von Hippel-Lindau Disease through the map. Connect with them and share experiences. Join the Von Hippel-Lindau Disease community.

Stories of Von Hippel-Lindau Disease

VON HIPPEL-LINDAU DISEASE STORIES
Von Hippel-Lindau Disease stories
Dear friends dont hide yourselves. We are a family vhlfa alliance.   Join us +6944969603 +2102711306
Von Hippel-Lindau Disease stories
I first found out I had VHL in 2007. I have always been healthy never broke a bone or been in the hospital never felt sick. I developed a tumor in my right kidney in late 2005. Doctors sugested removing the whole kidney and the cancer would be gone. ...
Von Hippel-Lindau Disease stories
My vhl experience begins around 12 yrs old. I woke up one day and was having blurry vision in my left eye. My mother took me to the eye doctor who sent me to a specialist. This Dr was fresh out of med school and I was one of his first patiants. He lo...
Von Hippel-Lindau Disease stories
At first my family thought we had pheochromocytoma, but when my cousin died NIH found out we had VHL. I was genetically tested in the fourth or fifth grade and do have the gene. My brother passed away from the disease, my mother has had numerous surg...
Von Hippel-Lindau Disease stories
My husband was diagnosed in 2004 with vhl has had double adreanalectomy kidney spine brain op and loss his sight due to vhl... 3 children also carry this gene and have had several operations and there also grandchildren as well 

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