I don't have much knowledge about the syndrome , I found out recently that I have the syndrome of waardenburg , I think the worst symptom and the hearing loss is often total or partial what is my case , only one ear , the loss of pigmentation also bothers me a lot that I would change in the syndrome and the fact that the eyes are far apart, and for this reason I suffered bullyng in childhood, I am proud to be who I am, I feel special , in fact I have always felt , good I'm in search of to obtain knowledge about the syndrome as it is not much studied.. I believe that there are more things about the waanderburg that we still don't know. I hope I have answered your question , it was incomplete but I hope to find many people who have the syndrome to as well.we join and ask for the brazilian government to study in more detail this syndrome , it up to you soon :)