World map of Waldenstrom Macroglobulinemia


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Waldenstrom Macroglobulinemia stories


A GIFT WRAPPED IN BARBED WIRE...


December 22, 2015 - I was diagnosed in March 2007 at age 55 after a routine blood test showed anemia, and follow-up tests found hyperviscosity syndrome. IgM was 62, which is 6200 in US units. Hematologist said I would need treatment in a matter of mo...

Views: 1085 Dec 23, 2015, 10:33 AM by Ron Ternoway

WATCH AND WAIT


I was diagnosed  nearly 3 years ago when a blood test for something else showed a high Igm.  Had 2 rounds of Chemo (Velcade) and had some bad side effects.  After a second opinion at the James Cancer Center in Columbus, Ohio  it w...

Views: 862 by Becky

WALDENSTROMS


    I was dxed with MGUS in 2008 by a nephrologist that I was referred to because of an e-GFR result. I progressed to Waldenstroms in 2014 after investigating my PN at MAYO. My PN is Anti-MAG. I was treated with Rituxan in January of 2015...

Views: 836 by Lynda

THE LONG ROAD TO DIAGNOSIS


spring 2014 sudden weight loss (2 stone) anaemic night sweats waekness; doctors went down gastric route until heart started to fail: superb consultant asked for tests in jan 15; even then had to spend a few months learning i had kidney cancer. in ...

Views: 813 by Jim

WALDENSTROEMS


My husband was diagnosed with WM in mid 2014. He has been in the watchful waiting mode. At his last onc appointment he has been told he needs to start treatment. He has been trying to heal his body with nutrition and supplements and is terrified of c...

Views: 797 Dec 12, 2015, 3:38 PM by Karen

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