Wiedemann-Steiner Syndrome

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Wiedemann-Steiner Syndrome stories

GUS'S STORY: OUR SEARCH FOR ANSWERS

Views: 777 Jan 18, 2018, 11:07 PM by anonymous

AMANDA'S STORY

Our son Finn (6) was diagnosed with WSS in May 2014.

Views: 758 Mar 31, 2016, 10:12 PM by Amanda

OUR DAUGHTER

Our daughter was diagnosed (I think 2014) aged 8. We knew Evie had some sort of syndrome when she was born in 2006. Initially the geneticists thought it was Cornelia de lange syndrome then she got the diagnosis a few years ago.

Views: 747 Mar 31, 2016, 8:46 AM by Evie

TATUM

My son, Tatum was diagnosed in January or February, 2016. He is 3!

Views: 645 Mar 31, 2016, 8:06 AM by ️Marcy Rossi

EMMA'S JOURNEY: FROM THE NICU TO WSS

Views: 465 Jan 17, 2018, 2:48 PM by Shannon

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